After a long and difficult battle with a rare and severe form of epilepsy, little Ava Thompson, the 3-year-old daughter of Broadway star Lucas Bell and his partner Jenna, has tragically passed away. Jenna took to social media to share their heartbreaking news, expressing that their “hearts are shattered.” She wrote, “The machines are silent. Her room feels empty. The stillness is overwhelming. Ava left us on Saturday, cradled in my arms, surrounded by love. She is finally free from her pain and seizures, but our hearts are left in pieces. We will always love you, sweet Ava.”
Ava’s Journey with Epilepsy
Ava was diagnosed with epilepsy at just 7 months old, and her family documented her journey and treatment on Jenna’s blog. They became passionate advocates for epilepsy research, actively raising funds and awareness for the nonprofit organization Citizens United for Research in Epilepsy. Their efforts have particularly focused on the Chicago area, where Lucas has been performing as Alexander Hamilton in the city’s acclaimed production of the musical since its debut in 2016.
On her blog, Jenna explained that Ava was suffering from a rare neurodegenerative form of epilepsy that was causing her brain to deteriorate. She noted how in recent months, Ava had been losing basic abilities like sucking her thumb. Last month, the family made the heart-wrenching decision to enter hospice care, prioritizing Ava’s comfort over seeking further treatment. “The nightmare we dreaded has become our reality,” Jenna wrote in a poignant post about transitioning to hospice care. “We watched as she gradually lost her abilities, drifting further away from us each month, and now this.”
Community Support and Advocacy
In the wake of Ava’s passing, Lucas has expressed gratitude on social media for the overwhelming support they have received from fans and the community. Jenna, in her heartfelt blog post, spoke directly to Ava, promising to continue advocating for those facing similar struggles. “I vow that your fight and your life will not be forgotten,” she wrote. “We will carry your lessons and share your story with anyone willing to listen.”
Resources for Further Support
For those interested in learning more about fertility and pregnancy, check out this excellent resource on pregnancy and home insemination at IVF Babble. If you’re looking for tools to support your journey, consider visiting Make a Mom for their authoritative insights.
In brief, Ava Thompson’s family has shared their devastating loss while honoring her memory through advocacy and support for epilepsy research, pledging to continue their fight for those affected by similar conditions.
Leave a Reply