At just nine months, I recognized that my son, Leo, was on a different path. By 17 months, I initiated feeding therapy for him, followed closely by early intervention services. During those early days, well-meaning friends and family would often say things like, “He’s perfectly fine” or “Boys tend to develop at their own pace.” However, as a healthcare professional and a concerned mother, I sensed something deeper.
Leo is approaching his fourth birthday this April, which coincidentally marks my own journey into motherhood. While my experience with autism is still relatively new, having received his diagnosis shortly after he turned two, I have gathered valuable insights along the way.
Our family’s approach to navigating life with autism is built upon four essential pillars that serve as our foundation for growth, learning, and love:
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Take a Deep Breath
It’s remarkable how often we’re reminded to breathe. From labor to those first precious moments with your newborn, breathing is a constant. Then comes the moment of receiving your child’s autism diagnosis. Allow yourself to breathe, to cry, and to process this news in your own time. Grieve as you need to; I still find myself grieving even now.As a parent to both Leo and his neurotypical older brother, I sometimes struggle to celebrate milestones, as Leo’s journey is inherently more challenging. I remind myself to breathe through these feelings.
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Understanding the Greater Challenge
While my journey with autism is difficult, I recognize that it is far more challenging for Leo. He communicates non-verbally, and I often find myself frustrated trying to interpret his needs. It’s humbling to realize that my moments of irritation pale in comparison to the daily struggles Leo faces. He experiences sensory overload, frustration, and exhaustion—emotions I cannot fully grasp.Leo has autism; I do not.
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Embrace the Process
Every aspect of this journey is a process. From evaluations to waiting lists for services, and witnessing your child’s progress, it all takes time. A fellow mother recently asked me for advice regarding feeding therapy. I proudly shared that Leo graduated after two years of dedication. Initially, he struggled with even the simplest baby food, but through perseverance, he now enjoys pizza at birthday parties alongside his peers. It’s a testament to the power of patience through the process. -
Cherish Parenthood
Sometimes, I feel like I’m on a whimsical ride through a chaotic factory, similar to that famous chocolate river scene. The endless tunnel of autism brings a barrage of thoughts—ABA therapy, speech sessions, dietary considerations, and more. I often find myself distracted, missing out on being fully present with my children. But I’ve learned to cherish those fleeting moments when Leo and his brother play together, laughing and bonding.At the end of each day, I return to that foundational breath. I listen to Leo as he sleeps, marveling at his peacefulness, and I wonder about the dreams that dance through his mind.
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In summary, parenting a child with special needs is a unique journey filled with challenges and triumphs. Embracing the process, understanding the hurdles faced by our children, and cherishing every moment as a parent can help us navigate this path with grace and resilience.
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