When discussing Obsessive-Compulsive Disorder (OCD), many misconceptions abound. A common error is equating a preference for organization with having OCD; simply liking a tidy space doesn’t mean you struggle with a serious mental health issue. Moreover, not everyone with OCD is preoccupied with cleanliness or germs. While fear of contamination is a prevalent symptom, the reality of living with OCD encompasses much more, including some rather unpleasant experiences.
Individuals with OCD may grapple with intrusive thoughts (obsessions) or repetitive behaviors (compulsions), and often, like myself, they experience both. The disturbing thoughts can be relentless and terrifying. I’ve found myself worrying about accidentally harming others, envisioning violent scenarios involving loved ones, or imagining driving recklessly. These thoughts are not about maintaining a clean environment; they are distressing and grotesque. The fear that these scenarios could manifest eats away at me—not because I’m concerned about mess, but because the idea of inflicting pain is abhorrent.
In my experience, the more I attempt to suppress these obsessions, the more intense they become. Instead of fighting them, I’ve learned to let them pass. I’ve been managing this for long enough to understand that these thoughts won’t translate into actions, unlike the compulsions I may feel compelled to perform.
While many associate OCD with an overwhelming need to wash hands or sanitize surfaces, my experience is quite different. I don’t fret over cleanliness in the typical sense. Unlike some, I find value in germs and believe they bolster our immune systems. I revel in the messiness of life—I love to sweat, get dirty, and have no qualms about using my shirt to wipe my nose or my hands on grass.
People often express surprise when they see my messy car, remarking, “I thought you had OCD. This is disgusting!” To clarify, my car isn’t that bad! But yes, my compulsions can be quite unappealing. I don’t relish performing these behaviors, yet OCD compels me to do so. Once the urge strikes, it feels like a poison that can only be alleviated through ritualistic actions. However, the relief is temporary; the anxiety never truly dissipates.
Some rituals seem to defy logic. For instance, during a particularly challenging phase of managing my OCD and PTSD, I developed a bizarre compulsion to smell my dog’s waste after picking it up. It wasn’t about enjoying the aroma or searching for illness signs. Instead, once I started, it became a struggle to stop, needing the act of disposing of the bag to conclude the ritual. The shame surrounding this behavior only compounded my anxiety, leading to more compulsive actions until I finally confided in my therapist.
I’ve also experienced skin-picking and have touched items that would make most people cringe. My compulsions have driven me to the brink of exhaustion with repetitive actions. I’ve even endured unsanitary situations, like sitting in a filthy restroom, driven by an obsessive fear of needing to use the bathroom. My anxiety doesn’t stem from a full bladder; rather, it’s the overwhelming dread of being caught in a situation where a restroom isn’t available.
OCD often feels like being trapped in a place you’d rather not be. It doesn’t mirror a tidy, controlled life with perfectly arranged surroundings. For me, it’s about grappling for control over a chaotic mind, leading to dark and messy thoughts without regard for cleanliness.
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In summary, OCD is a complex condition that goes far beyond a fixation on cleanliness. It can manifest in various ways, leading individuals to confront unsettling thoughts and perform rituals that may appear bizarre or gross to outsiders. Understanding and discussing this disorder is crucial for those who live with it and those who seek to support them.

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